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Spring 1998
To Save Two Lives
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Andrew
was diagnosed when he was two months old. He responded well to medication
and did not need a transplant immediately. But at a year old, there
were signs of fluid seeping from his liver.
One
day in October 1997, two months after his second birthday, Andrew
began running a fever and had diarrhea. Twenty-four hours later,
he was vomiting and his temperature had shot up to 104.6. He was
admitted to the hospital, gasping for breath. At first doctors couldn’t
determine what was wrong. “Finally they explained to me he had a
blood infection,” recalls Jadonne, a small, round woman with masses
of brown hair and creamy skin. “It was his peritoneum [the membrane
that lines the abdomen]. His belly got so distended it pushed his
lungs up. It was so huge, it was painful to see.”
Andrew
was on life support for 12 days and nearly died. He recovered slowly
and was eventually sent home. But now he didn’t want to eat, a problem
common to babies with liver disease. To encourage him, the family
played a little game. Every night they would sit around the dinner
table, clap their hands and say “clap, clap, clap!” when the toddler
took a bite.
The
Gyswyts, Jadonne and Paul, a clean-cut, quiet man of 41, began to
mentally brace themselves for the possibility of a transplant. In
mid-November of last year, they met with Dr. McDiarmid at UCLA.
A charming woman in her late 40s, McDiarmid is the soul of UCLA’s
pediatric liver transplant program. Like Busuttil, the cheerful
Australian native is devoted to her work. One of McDiarmid’s primary
responsibilities is evaluating whether a child is a suitable candidate
for a transplant. In Andrew’s case, “the first visit was to decide
whether this was it for Andrew’s liver,” recalls Jadonne. “Dr. McDiarmid
asked us a lot of questions.”
The
Gyswyts weighed their options. Andrew was sick, in fact, quite sick.
But perhaps not that sick. An ultrasound actually showed a normal-sized
liver. The family’s neighbors in Laguna Niguel pointed out how good
Andrew looked and asked, “Do you really want to put your little
boy through all that?”
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